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The Misdiagnosis and Non-Diagnosis of Females with Asperger’s

Many, if not most, females with Aspergers and High-Functioning Autism “slip through the net” (i.e., go undiagnosed) because they camouflage their symptoms quite well. Often times, their difficulties are ignored and misunderstood. 

In addition, many of these women report having experienced one or more mental health issues (e.g., anxiety, depression, eating disorder) and have stated that mental health professionals treating them had not noticed that their symptoms could be related to Asperger’s or HFA.

Here are direct quotes from a few women on the autism spectrum:

• 5 years of depression and anxiety treatment, years of talk therapy, and not once did any therapist suggest I had anything other than depression.

• I went to my doctor for depression and got diagnosed with multiple personality disorder, which is completely opposite to what I am. 

• The reward for trying hard to be ‘normal’ was to be ignored. I read stories of children who are going off the rails, and I think: ‘I should have been more of a trouble-maker’. 

• Had I known about Asperger’s, I think I would have known that I’m more gullible - and I might not have ended up in the circumstances that I did. 

• A lot of my problems came about with my friends having other friends that I didn’t like or I didn’t get on with. I didn’t really want to share my friends.

• I don’t sense danger. Me not reading people to be able to tell if they’re being creepy, I was so desperate for friends and relationships that if someone showed an interest in me, I kind of went with it and tended not to learn from others’ safety skills.

• I feel pressured by society to have sex with my boyfriend because you get told this is what is expected of you to make to be a good girlfriend - and you think, ‘if I don’t do it, then I am not fulfilling my duties’.

• I robotically mimic what other people are doing, what they are saying, how they say things. Once I went to Girl Scout camp, and I would come back with strong accents. But I can’t consciously adopt an accent. My way of coping is that I mimic.

• I practiced something of a persona which was kind of cheerful and vivacious, because I had nothing to say other than adult novels. So, I cultivated a fake image.

• I honestly didn’t know I was doing ‘social mimicry’ until I was diagnosed. But when I read about it, it made perfect sense. I copy certain body language and speech patterns.

• I just feel so much more comfortable with men because they’re more, you can take them

• When you’re a child with AS, you don’t realize that you’re anxious and depressed. It feels familiar. If my parents had helped me from earlier on, then life would’ve been a whole lot easier - but they had no idea what was going on because I hid my feelings.

• I was often accused of being rude when I had absolutely no intention of being so. My 5th grade teacher told me I wasn’t trying and that I was a waste of her time.

•  I was very defiant with my mom, but had perfect conduct at school.

• I’ll always remember my teacher saying, “You’re too good at Math to be autistic.”

• I’ll mask if I act weird, which is typical of AS. I’ll make a joke about it.

• It’s very exhausting trying to figure out everything all the time. Everything is more like on a manual – you’ve got to use one of those computers where you have to type every command in.

•  Not knowing what was expected of me, not being able to pick up on when to provide support or how often to get in touch, this was my greatest source of stress.

• When I was being bullied, I was told not to antagonize these girls - and actually I was only antagonizing them by being myself.

==> Living With Aspergers: Help for Couples

1 comment:

  1. Getting eval in November. My 9yr is HFA and it's made me wonder if I am. So much of this is me. I mask everything in sarcasm, social cues and how to stay connected with people are over my head most days, and I turn into a hermit when I get too much going crazy around here.

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