My wife suspects that I have Asperger Syndrome. I often wonder the same thing. She's been pushing me to seek a diagnosis. How exactly do they diagnose an adult who may (or may not) have this disorder? And is it ever too late to seek a diagnosis (I’m 32-years-old!)?
It is never too late for you to increase self-awareness in order to capitalize on strengths and work around areas of challenge. Knowing about Aspergers gives you an explanation, not an excuse, for why your life has taken the twists and turns that it has. What you do with this information at the age of 32 is a personal decision, but it is still very important information to have.
When adults come in for a diagnosis, the therapist usually begins the exam with an IQ test. Since Aspergers adults have normal or above normal IQs, this is a good place to start. The therapist also administers an assessment of adaptive skills which tests the client’s ability to manage complex social situations.
Aspergers doesn't suddenly show up when you're 32, so most young people with true Aspergers showed symptoms throughout their childhood. Thus, if a parent is available, a parent interview called the Autism Diagnostic Interview Revised (ADI) is administered. The therapist will be looking at current functioning and early history to get a sense of the client’s skills in social, communication and behavior domains. If parents aren't available, the therapist may ask the client to recall their childhood, asking such questions like “What hobbies did you have?” … “Did you have a lot of friends?” … Where you bullied as a child?” … “What did you enjoy doing?” …etc.
The therapist may also administer the ADOS Module IV (i.e., the autism diagnostic observation schedule; module four is for high-functioning, verbal adults). Along with the ADI, it allows the therapist to look carefully at social and communication skills and behavior. The tests look at such questions as:
- Are you interested in the others people’s thoughts and feelings?
- Can you have a reciprocal social conversation?
- Do you demonstrate insight into relationships?
- Do you have odd or over-focused interests?
- Do you use appropriate non-verbal gestures and facial expressions?
The test allows the therapist to attach a grade in each domain to determine whether the client meets the criteria for Aspergers.
It's not unusual for a client to come in expecting the diagnosis of Aspergers and to leave with a different diagnosis. Distinguishing between social phobias or shyness and actual impairment with Aspergers can be very tough for a layperson. Other disorders, such as OCD or social anxiety can sometimes look like Aspergers. If the therapist picks up on these other disorders, he/she can recommend appropriate therapy and/or medication.
A diagnosis is primarily used to drive treatment decisions and to make it easier for clinicians to communicate with each other. But in many cases, it can also be an enormous comfort to the adult and his family. As long as a person with Aspergers feels like he is being blamed or criticized for something he doesn’t even understand, he can only be defensive or bewildered. When the people around him feel offended or disrespected, he can only get exasperated, argue, or write them off. But when the thing that makes a relationship difficult is named and understood, it becomes a problem that can be worked on together. That shift can change everything.
Living With Aspergers: Help for Couples
• Anonymous said... Always knew inside but didn't get diagnosis til 52! Definitely helps explain all the train wrecks of my life, but don't know if it will prevent future ones yet. I'm going forward with hope that "knowledge is power" and wishing for the power to find a way to live happily in the mostly NT world. I would encourage you to get a diagnosis, though for adults it's frustrating trying to find someone to do this unless you live in a progressive area. Good luck!
• Anonymous said... I also have trouble making eye contact, but I'm getting better each day as I practice more and more. Whenever I get asked to stare someone in the eye, that's when it gets awkward I find.
• Anonymous said... I was diagnosed late at age 48. The diagnosis helped to explain a lot of my inner feelings(shy/withdrawn/living in one's own world/almost obsession with certain 'specific' subjects that did particular appeal to me)/outward behaviors(not given to socializing much/not understanding why I'm so damn awkward in public/avoiding parties like it was the plague...-(due to too much over-stimulation)- like I just cannot 'fit in'?!). it gave me the 'why' I do what I do; whereas before I never really quite understood what made me think/feel/act/behave so 'different'; and, now, I feel it all makes perfect sense, and, finally, I know why. This was/is a great big relief; as I feel we all wish to both know/understand ourselves more...and, why we relate to others like we do. For example, When somebody asks me why I'm NOT inclined to go stare them directly in the eyes; I can now-a-days say it's because I suffer from Asperger's; but, that still doesn't mean I cannot 'try' and look them in the eye; some AS people through doing sufficient practice have been able to overcome this. That's why I say 'labels should never ever limit you; because we as human beings are totally and completely limitless, instead; we constantly develop/change/grow.' The person who I was yesterday; might not be the same person who I am today; and, tomorrow, I might have changed yet again.
• Anonymous said... Like any other disability, you can't manage what you don't know you have. Getting diagnosed allows you to start learning how to adapt to this neuro-typical world. You'll definitely gain a better understanding of yourself, and why you see the world so differently than other folks.
• Anonymous said... my husband was diagnosed age 60yrs old,never too late,both daughters have it too,best thing ever ,hubby glad he got diagnosed too,we understand each other more now,
• Anonymous said... My husband wasn't diagnosed till late 30's and it helped make everything fall into place and things started to make sense in certain areas and ways for him. It saved our marriage ! I said to him you either have Aspergers or you are one self centred prick! It could help you both in numerous ways!
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