- think that treatments should focus on giving them the means to overcome the challenges associated by ASD rather than curing it
- support programs that respect the individuality of the autistic
- prefer the word "education" over "treatment"
- try to “teach” other ASD individuals rather than “change” them
- are in favor of helping make the lives of people on the spectrum easier
• Anonymous …On a bbc documentary called living with autism (an excellent programme btw) Simon baron Cohen has a brilliant explanation for the autism spectrum and how most of the world population is on it somewhere. This explains very well why some adults who are aspergers do not get a diagnosis either becuase they are not considered to be affected badly enough or becuase their issues are assigned to something else. Why in my case my issues were put down to 'well every has this or that experience or problem'. True moreso now I have seen prof. SBCs explanation. He draws a line on a piece of paper and on one side puts zero and the other 50. He then puts 25 in the middle. He then explains most people have 'some' ASD characteristics from zero to 25. Then some have 26 and over. The ones under 25 may be considered normal whilst over 25 may be seen to be ASD. But he then added that even though someone may clearly be ASD, the professional may still decide to not diagnose IF in their view the ASD is not impacting severely enough to necessitate the label. I found it re-assuring to find that most of us have some characteristics found in someone ASD becuase of this confusion some professionals were having over diagnosing becuase other people had similar issues who were not ASD, what I did find a bit of a problem is that clinicians still get to decide who to give or not give a label to. Not becuase I label is a good or bad thing but simply becuase the clinician decides if the person with ASD is suffering enough. I do not think it should be the decision of a clinician to decide what constitutes a good or bad quality of life for someone with an ASD. The only person who knows is the person themselves and if they've gone to be assessed for an ASD then clearly there is an issue! The label is regarded by some as unhelpful. Unhelpful to whom? Why unhelpful? If someone has ASD symptoms and are ASD then the label applies. End of. It is preposterous to infer that by giving a label to it you're damning the person with ASD. How so. When you consider it is a developmental disorder the damage for the want of a better dictum is done before or at birth. So how exactly does giving a label to that damn someone? It is a label that defines what is already there you muppets. So help and support can then be sought for the symptoms by the sufferer. IMO the only reason for not giving a label is to keep numbers down and funds are then not needed for those people becuase they are not 'officially' in need becuase they are not 'officially' ASD. To suggest someone with an ASD will be harmed further with a label is rubbish. And it insults our superior intellect. Since being diagnosed with aspergers I have been able to grow. To understand better my symptoms and embrace my qualities that previously actually had been misdiagnosed as personality disordered etc. Really helpful right!? Misdaignosing me added years of torture and misery onto me and my family. Since the (correct) label was given to me I have become empowered. Sadly there is little support for me still yet I have been able to get some extra support becuase of the label so not damned but some help and I have been able vto help lyself and others have gained a better understanding of my condition too so tolerance and support all round. So again I ask, why exactly is is a problem for me to have a label exactly? The ONLY issue I see is being given the WRONG label not being given the correct accurate one. For someone with an ASD labels are brilliant! For a profession that deals with labels all the time and thinking about it we all use labels all the time to say that 'labels aren't helpful', are you kidding me?!? Take it from a 50 year old asperger's person aka sufferer, this label is definitely helpful to me and those in my life. For the help and support for my issues and for the qualities I now can finally embrace. That were mis-labelled by these same clinicians as personality disorder and character flaws. More (accurate) diagnosing and labelling please not less.
• Anonymous …I have Asperger's and have a lot of work to do to improve my social skills and interaction. I find that having been a member of a nas (national autistic society) group, the other Aspie's in the group are affected very differently to myself. Unfortunately; attending the group didn't help me to make progress in any way; i felt I didn't really fit in. I was diagnosed with Asperger's at the age of 22. I'm now 34 and have an awful lot of progress to make. Any Aspie who suffers with depression; i too; understand how it feels. I have suffered with depression for many years since my Asperger's diagnosis. It can be very hard at times and I guess life is not always easy for anyone. I hope with time that things will get better and that I will move on and get back to being my usual happy self. Hopefully I can vastly improve my independent living skills too: and reach my goals in life. And get the right help to improve my mental health too.