Are you an adult with High-Functioning Autism or Asperger's? Are you in a relationship with someone on the autism spectrum? Are you struggling emotionally, socially, spiritually or otherwise? Then you've come to the right place. We are here to help you in any way we can. Kick off your shoes and stay awhile...

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When Your Partner with Autism Spectrum Disorder Drives You Crazy!

You have a friend or love with High Functioning Autism (Asperger's), and you don't understand him or her, so it's making you crazy? It doesn't have to be that way. Remembering a few things will help you avoid going totally bonkers! So, here are some sanity-saving ideas (assuming you can muster-up a bit of compassion):

1. Accept that people with HFA are intelligent, and may have extraordinary skills that you may or may not understand, but very possibly lack what will seem to you to be common sense. The best way this was described to me one day was this way: “HFA is one of the 'unkind' disorders. Most individuals can't understand how an HFA adult can solve very complex problems, but doesn't know to get out of the rain.”

What this means in your relationship is that the partner you care for is intelligent enough to come up with solutions, even complex ones. Making things simple is the harder part. Accept that if he/she says ''I need help with ___'', that is what he/she needs help with, even if it doesn't seem possible. The other side of the coin is if your partner says ''I am capable of ___'', it is a good idea to trust that. A diagnostic measure of HFA is that these individuals must be of at LEAST average intelligence. As such, the man or women you care about is more likely to know his or her limitations.

2. Accept that HFA people need love and understanding. Individuals with HFA (despite what has been widely written) do have emotions. In fact, more often they are rich with emotion, not devoid of it. More modern literature is starting to reflect this more accurate position. The difference is that the response is different in them. Individuals with HFA are often very lonely and can become depressed as a result of feeling out of place in the world.

3. Accept that you and your partner don't think alike. This means that you are likely to misunderstand each other. Knowing this will enable you to do three things:
  • When he/she says or does something that seems hurtful, you can trust that it may not have been intended the way you thought, even if it seems very clear to you.
  • When you say/do something that your partner takes offense at, you can trust that he/she is misunderstanding you honestly and not trying to be critical.
  • When family members, co-workers or friends seem to be having a ''group opinion'' in the negative about your partner, you have the insight to be able to say, ''It may appear to be that way, but I think it's a big misunderstanding''.

4. Accept that you don't experience life the same way as your HFA partner, so his/her obstacles, interests, complaints, frustrations are likely to seem illogical to you and those around you. There are many issues which contribute to the way HFA people view the world around them. There are communication issues, stigma, sensory, stereotypical interests, unique responses to social issues and stressors ...many more things than you may be able to imagine. If you look at it as if they are dodging paintballs all day long every day (paintballs which are invisible to you), it may make a little more sense that they move the way they do, talk the way they do, and make the decisions they do.

5. Adjust your non-verbal messages. If your HFA partner seems to be misunderstanding things (e.g., your tone of voice, body language, pauses, breaks in communication, expressions, etc.), you can educate him/her to understand your messages in a non-threatening way. 

With regard to body language, be sure to make an exaggerated connection between the motion and the emotion. If for you, crossed arms mean you are thinking and not angry, you could nod thoughtfully (with arms crossed) and say, "Hmmm.... Yes, I'm thinking about that." The same goes with leaning in, turning away, etc. Make the connection clear. The good news is that with this type of "lesson," your partner is likely to learn your messages fairly quickly. 

Communicating tone, pitch, volume, etc., is a little more overt. If you are cognizant of the misinterpretations, simply say how you are feeling or thinking at the time. The way this is different from the above is that it's direct information instead of strongly implied. If your tone of voice seems to frighten your HFA partner, simply say, "I know my tone may sound firm to you, but that is because I am very worried about this situation" ...or, "I'm pausing for a minute here to think." With this type of information, your communication is likely to need to continue, as tone of voice, etc., is a very subtle change and has more room for frequent misinterpretation. Body language is a little more consistent.

6. Adjust your words. Once you know whether your HFA partner is relying more on words or non-verbal messages, take an extra step to be clear in that area. Use specific words, think about how you want to explain what you want to say, communicate in email if practical, so the words can be read and re-read if necessary. If you believe you are being misunderstood, ask! Check for clarity. Phrases like "If I understand you correctly, it sounds like you are saying..." and "Help me understand what you mean by..." On the other side, you could also say, "Does that make sense?" ...or, "I'm not sure if I'm getting my message across." This opens the door for your HFA partner to say, "Actually, could you explain further?"

7. Agitation, or a sense of nervousness, being hyper, etc., is often a result of stress in the individual with HFA. If you see increased activity, you can actively participate in dialing down the intensity by saying things which might be relaxing (e.g., "Ok, let's take a step back here").

8. Be aware of your HFA partner's personal space. She or he may have a space defined differently, spatially. If you see that your partner seems agitated or diverts gaze when you are within a certain distance, you can trust that you are within her or his personal space.

9. Consider your verbal vs. non-verbal communication. Most HFA people will fall into one of two categories with this regard. They may either rely more heavily on your words and less on body-language, or they may rely on body-language, but result in higher frequency of misinterpretation. Find out which your HFA partner does. How? Listen. If you find that he/she is frequently misunderstanding you without stopping to consider that he/she is completely off base, he/she may be misinterpreting your body-language and otherwise non-verbal messages (e.g., expressions, tone of voice, conversational pauses, etc.). On the other hand, if your HFA partner repeatedly asks questions about what you are saying, he or she is relying more heavily on your word usage.

10. Don't be afraid to ask questions. When a remark sounds ambiguous, it's perfectly fine to say, "What do you mean, exactly?" People with HFA know that "neurotypicals" (i.e., people without autism)) have a hard time understanding what they say. You are likely to raise more flags if you don't ask questions about their meaning than if you do.

==> Living With Aspergers: Help for Couples

11. If the HFA individual you are communicating with is not very close to you, it may be helpful to maintain a more formal tone in your communication. Not that it is necessary, but the type of communication used in more formal verbal communication can be very comfortable to adults on the autism spectrum.

12. Intellectual icebreakers can put individuals with HFA at ease. Discussing something you learned or read about can reduce the stress in this person and very likely improve the success of the conversation.

13. Keep your eyes and ears open for signs that your HFA partner is trying to understand. Communicating is not a one-way street, and the responsibility of connecting with information should not rest solely on your shoulders. Although it may seem like it sometimes, you might not be aware of what your HFA partner is doing to try to understand. You process information differently, so the things you would do to try to understand him or her may not be the same things he or she would do. Watch for things like concentrating intently in a conversation, questions about what you are saying, and repeating back to you what you just said. 

Using "big" words is another way that adults with HFA try to be very clear. They are intelligent and don't always realize that their neurotypial partner may not understand the difference between close synonyms. 

Another trait which might be frustrating to some neurotypical partners is when HFA people over-explain. If you can see this as an attempt to be clear, you can re-frame your perspective and possibly feel more comfortable in saying, "Ok, yeah, I gotcha." You may be surprised to find your dear HFA man or women a little bit relieved that you get what he or she is saying!

14. Individuals with HFA don't respond to criticisms, threats and manipulation the way typical people do. Even if you don't think you are, if your interaction is perceived this way (even falsely), you are likely to get an unexpected response. Diffuse the situation by saying something caring or suggesting a break.

15. Put aside what you "think" you know. Communicating with someone who has HFA (while holding on to what you think you know about how people communicate and what certain things mean) can create unnecessary stress. The individual on the other side of your message is also an individual -- a person who thinks about things in a different way than you do.

16. Reaching out to someone who has HFA may open more questions for you than provide answers, but a greater effort is likely to yield a greater reward in the long run.

17. Stress increases behaviors you may find frustrating. Decrease the stressors, however small, and you will decrease behaviors which you both find frustrating.

18. The more comfortable an HFA person is, the more likely he/she is to be relaxed in conversation and easier to communicate with, understand, and be understanding. Trust the individual with HFA who demonstrates a wish to do something relaxing in the face of important issues. Reduction of stress can be critical in important situations, and might not be considered as a lack of understanding about the urgency of the situation.

19. Think about your words. Many people with HFA listen to each word which is spoken, and they interpret your meaning based on their understanding of the definition of the words you use. Most neurotypicals are able to generalize a little better when someone says, "Put a pile of mashed potatoes on my plate ...I'm starving." Say this to a person with HFA and you might get a blank look. When the message is in words (rather than body language), it pays to be as specific as possible. Doing so can save time in the long run, preventing repeat requests or lengthy explanations, when a more precise word or phrase is all that is really needed for the HFA partner to get your meaning.

20. When an HFA person looks away during communication, see it for what it is: reducing visual stimulus to be able to better process what is being heard, or to more clearly determine what he or she wants to say. Shifty eyes do not necessarily mean deceit!

Having said all of the above, it's common for the NT wife to feel hurt by her AS husband's lack of insight into how to be a team-player in the relationship. His behavior may not be purposeful, but it can still feel like you're in an emotionally abusive marriage with an emotionally unavailable man (see comments below).


Anonymous said... I have been married to an Aspie for 5 years this June. Although not officially diagnosed, we have known for at least three years if not more. We have two children, one is three years old and the other is three months. In short, last week our relationship hit a low after I struck a nerve saying, "I feel like we are just roommates." That statement initiated a conversation that questioned the sustainability of our continued marriage. He isn't happy, and knows he "won't change to be the kind of man [I] deserve." We both admit to faults in the marriage, and agreed to both try over the next three months to see if we can make it work. I'm pretty sure he's trying out of fear of losing his children; although, I am trying out of fearful of losing him. That disconnect in reasoning hurts. I love him for who he is; his Aspie traits were what I fell in love with in the first place, and I don't want him to be someone else. I also hope we can learn to be a couple around both of our strengths. All this being said, it's been one week of trying and I am tried. To really complicate things, he lost a fellow firefighter in the line of duty this past Thursday. It's hitting him hard, and it's clearly difficult for him to process the emotions. I give him his time to be alone, I try to be there if he wants to talk about it, we even had sex in hopes of some release. (Which btw was the most distant I have EVER felt him  :-/ ) He's trying, I'm trying, but I feel so alone at times. Since he doesn't share his feelings and he's good at continuing everyday life as if nothing is wrong, I am fearful. I am fearful I will go through this roller coaster of emotions every day, think everything is fine, but in three months find out his feelings haven't changed. I guess I'm looking for support and encouragement here. Although, I ultimately want to stay together, I do realize that separation in three months is possible. But, I won't accept it if I haven't tried my all, and continuing to try my all might be easier with encouragement. My friends and family try, but they don't fully understand Asperger's. Those with Asperger's, I would love your input/perspective on things too if you are willing to share. Those married to on individual with Asperger's, share your experiences and encouragement with me? Thank you.

Anonymous said... I just finished reading "Everyone Marries the Wrong Person" it helped me to put some things into perspective. When communicating I have to work to get him to understand other perspectives instead of his own. He expresses love by making me a sandwich, I need to tell him I appreciate it, but also that I express love differently. Often when I feel like we are just roommates, it's because I'm not communicating correctly and it's something I need to change either in my thinking or my actions.

Anonymous said... I'm finding I need to rely omg friends and family for to meet some of my needs, and definitely trying to solve the physical needs problem.  πŸ˜…

Anonymous said... It's comforting to hear similar experiences. I used to joke that my husband only has two emotions. Now I'm learning that it's not a lack of emotions, but lacking the ability to process them. 
I also used to tell him "it's not easy being married to an Aspie," but found out it was hurting him.  πŸ˜” I'm sure it's not easy being an Aspie married to a NT.  πŸ˜…In regards to you sleeping in separate rooms... I started to realize with our work schedules and me encouraging his down time, we spend almost no time together. BUT, I'm trying to make our time quality time together... maybe less is more. Idk, I'll find out. Anywho, THANK YOU again for sharing!

Anonymous said... I've been with an Aspie for 10 years and boy do I know how you feel. We've broken up twice and I felt the exact same way you do. It took us probably around this last year for us to really communicate and a lot of that is because I had to learn how to really talk to him. I tell him being married to him isn't for that faint of heart. I used to think he didn't care and that I deserved a man who would truly love me not just want to be with me so he wouldn't be alone. I learned I have to be very clear about what I am feeling. Pretty much whatever my husband is thinking flies out of his mouth and sometimes it can be hurtful, especially when he is getting ready to have what I call a melt down from being over stimulated from everything and not having a chance to just decompress. I wait for a bit because I know if I get angry during that time he's going to get more frustrated. I wait about ten minutes because then it's like nothing ever happened which I used to think meant he didn't care. I calmly tell him "when you say (be specific) it hurts me." I learned (this may not go for all aspies) that picking up on cues of what my feelings are isn't something that is easy for him. When I tell him he understands and is remorseful. Again, this may just be my husband but when describing my emotions to him I have to use the raw description first such as angry then followed by frustrated. It really helps that we sleep in different rooms. I know that sounds weird but it gives him a chance to decompressed and have his alone time and then when we spend time together it's real quality time. When he comes home he goes off for about an hour or so before we greet each other with the kisses and hugs and the "I missed yous". It's been HARD, I'm not going to lie. I had to learn to speak his love language. There are still times I want to rip my hair out or we have a fight because I just can't stay calm or I just wish he'd pick up that I needed help or that I needed him to be selfless because I feel like he is being selfish on purpose or that when I ask him to do something it's not an order which he'll fight against. Lol It took me looking up article after article and hours of research to even get me to this point but honestly and this isn't meant to be disrespectful to anyone but with us I have to put in what feels like more of the work. BUT he's been really really trying and that's changed our relationship so much! Now, that I tell him how I feel it's easier for him to react to it and comfort me (sometimes I have to tell him I had a hard day and need to be cuddled and loved on. Lol) He's trying so hard and that makes all the difference. Anyone who meets my husband knows he is, what they say "different ". I honestly don't know if any of this applies to anyone else's hubby or wife. But I love my amazing husband. He may be what others call different but to me he's better than any man I've ever known. I hope this helps. I feel like it's more of a communication thing and teaching him your love language too because people think my husband is a cold and unfeeling man (He may have a worse case) but he's anything but. It just isn't easy for him to process his emotions right away and harder to express them.

Anonymous said... The question is... how do you figure out how to communicate "correctly?"

Anonymous said... I feel like you pretty much described my life! I've been with my husband for 6 years but we've only been married for a month. It took the first four years to learn how to communicate and we broke up a couple times because of the communication issues. The biggest thing that helped us was lots of research on my part and finding out each others love languages. His melt downs are the hardest times for us and especially because I can be very emotional. However my husband is different from other Aspies in the sense of he almost always wants to cuddle and hug me especially if he's having a rough day. Most people see my husband and cold and distant as well but he seriously has this amazing heart his emotions just don't come out the way it does for others.

Anonymous said... I think you should join this page it may help you with our relationship. or at least to understand my aspie mind a bit better.

Anonymous said... I've made that statement several times to my Aspie fiance. We've been together for 5 years. Most days I'm okay with it as I seek my emotional needs from friends. Physical needs .... That's another story.

Anonymous said... To be honest I tell my husband being married to me isn't for the faint of heart either because I am bipolar. A bipolar and an aspie make a pretty interesting match. Haha He's been pretty darn patient with me before I knew what I had.

Anonymous said... for us it means me being direct with what I need. For instance, if it's more physical contact, then I tell him and initiate it.

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  1. I have fallen head over heels with a beautiful man I strongly believe has Aspergers. I have spent the past six months or so since I realised what may be going on with him reading up on everything I can find regarding this syndrome. I want to understand and need help with how to manage some of his behaviour. At first I was confused and hurt by his actions and took it personally. I now feel a deep sense of sadness that someone so gentle, protective and intelligent finds expressing feelings of love so difficult. I can literally feel the anxiety pulsating out from him in waves. I think that one of his traits is avoidance due to the fight or flight theory. In his case it is always flight. He runs from any ‘threat’ of physical intimacy and in all the months we have been close as friends he has only been able to text his sexual desires for me. Don’t get me wrong I feel privileged that he feels comfortable and safe enough with me to do this but I have no clue how or if it will ever get past this initial stage because after he has confessed he ignores my texts to him and hides away at home for weeks at a time. Then it’s as if we have to start all over again from scratch. It’s exhausting but I can’t stop myself from being in love with him. I honestly know that this is the first man I have ever truly loved. There is no walking away. It’s not an option. Since discovering this syndrome I also believe that this may have been what my ex husband of 17 years probably suffered with too. Many traits all seem very familiar except that he was also a sex addict who had multiple affairs and was also aggressive. I’m wondering if it is possible that I am subconsciously attracted to emotionally unavailable men? I have taken the ASD online test myself out of curiosity and I got over half of the questions directed towards ASD so the results did state there was a strong possibility I was on the spectrum too. I need a lot of alone time and am not very social but tend to mask to cover it up. I always thought I was an Empath because I feel others emotions and energies very strongly but perhaps it was this all along? Confused? Absolutely! I realise I’m rambling now so I’ll just leave it there.

  2. I understand that the autistic person (their phrasing) whom I care about thinks very differently than I do and likely has problems expressing emotion. Oddly enough, since they have had to study how NT's act to get along, they definitely have more emotional intelligence than I do in some respects, but very little idea of how to put it into action in their own life. They're worth making the effort to understand and to find ways to communicate. But I don't know that I'm going to be able to do *all* of the reaching out and connecting, forever. It's a terribly painful imbalance with a fairly poor rate of return for the effort.


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