tag:blogger.com,1999:blog-212330848782074107.post2533441686995616079..comments2024-03-28T16:09:12.437-07:00Comments on Support & Education for Adults on the Autism Spectrum: Anger to Meltdown to Guilt to Self-Punishment: The ASD DilemmaUnknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-212330848782074107.post-26145727451938833932023-05-13T04:30:52.916-07:002023-05-13T04:30:52.916-07:00I’m so sorry to read that you have been feeling lo...I’m so sorry to read that you have been feeling low. It is very distressing to have “invisible” disabilities that really do impact every aspect of life. I’m sure you are a very loving mother to your children, and I am glad your parents are there to help you with some of the things you are not able to do. This does not mean you are useless (as you mentioned that you feel this sometimes). You are a person of value, and the insights you have due to personal experience will be invaluable to your autistic child as he grows up. Thank you for sharing your story so bravely, it must have been difficult. ❤️🩹 Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-212330848782074107.post-22149848425017933162022-06-25T07:15:43.864-07:002022-06-25T07:15:43.864-07:00Thank you for shearing , very impressive strength ...Thank you for shearing , very impressive strength and power you have. God help you🙏🌷Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-212330848782074107.post-54890399298414226092022-03-09T00:15:19.385-08:002022-03-09T00:15:19.385-08:00I’m a 35yo female with moderate ASD- I live with m...I’m a 35yo female with moderate ASD- I live with my mum & dad & have 2 sons, one is 12 who also has ASD- & the other is a 6 month old baby- I also am a chronic illness & pain sufferer & have 2 major surgeries ahead of me & to recover from- the last 7 days have been hell as so much drama with my son & his problems at school & the absolute guilt that my parents look after my baby because I am impaired physically & I hate myself for it- I blame myself I’m sick- I have PTSD-<br />“shell shock” agoraphobia- OCD- circumstantial depression- severe anxiety disorder- I have brain damage/impairment because when I had my baby by caesarean I died on the operating table & my brain lost oxygen which is called HYPOXIA- <br /><br />Then I have my “physical” Health issues- I will list them so ppl can kind of understand what I’m battling on top of having bad Aspergers :-((<br />•1- Chronic Fatigue Syndrome/M.E<br />•2- H-eds Hypermobile elhers danlos syndrome <br />•3- P.O.T.S postural orthostatic tachycardia syndrome <br />•4- I.I.H idiopathic intracranial hypertension <br />•5- 2 prolapsed disks in my lumbar spine L4 L5<br />•6- Raised Rheumatoid factor/ chronic inflammation <br />•7- a “giant” incisional Hernia <br />•8- destroyed teeth caused by EDS & medicine I’m prescribed long term. Requiring full jaw surgery by a maxillary facial surgeon<br />•9- Sliding patella- so my knees dislocate frequently because the ligaments that hold my kneecap “patella” in place are far too long which again “requires surgery” & my back is at <br />“Borderline surgery level” I was told by a pain specialist. So….. as you can see’ it’s a LOT for a neurotypical let alone a person with Moderate level Autism, 2 sons, My eldest with ASD also- I absolutely adore and smother with LOVE- but when it comes to arranging things for them- “school” “appointments” “activities”<br /> “making friends with other mums” I just feel absolutely USELESS- I don’t drive so I can’t get them anywhere so it’s all on my parents in that regard… :’-( I have never had a job- I left school at 14yo because I couldn’t handle it & didn’t understand why I was even there- at that stage we didn’t know what was wrong with me and it was ASD- I could never live alone it’s one of my biggest fears, never travelled- never had a serious relationship- I don’t date or “go out” I feel like a scared overwhelmed kid in a big scary Adults World & it’s so so scary sometimes I just cry and cry. I don’t know what to do because I can’t handle being this bad anymore- I need a glimmer of “HOPE” or do I need to just accept the fact I’m chronically ill & accept it with grace & just do what I’m capable of & stop beating myself up?<br />I don’t know the right answer :-( but I know having a huge Meltdown & bashing myself in the face & head’ cutting /hacking off all my long hair and throwing myself on the floor as hard as I can <br />is NOT the answer but it was uncontrollable- I’ve never felt so out of control & as you can see by how much I have written I desperately want to be the best me possible- & best mum & daughter. I won’t give up- it’s a battle it really is, and I’ve been through the wringer to the point it’s impossible to type and explain, I’d have to write a HUGE book. Anyone reading this- <br />YOUR NOT ALONE- YOU ARE WORTHY- & I wish everyone here the very best xox sometimes it can make us feel so alone, like no one else in the world could possibly be going through things like this… But sadly- there are, & lots of people. <br /><br />That’s it… I said it all which is out of character for me to overshare “especially online”- <3 •••Love&Light•••ScaredyCathttps://www.blogger.com/profile/11000937558700009305noreply@blogger.com