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How I Live with Asperger’s: Tips from a 52-Year-Old Man on the Spectrum

My name is Carlos and I’m 52 years old. I was diagnosed with Asperger’s back in 1997 at the age of 32. Through many years of painful trial-and-error, I learned a few things that have helped me cope with my disorder. 
 
I tried to be proactive from the very beginning of my Asperger’s journey –  learning about the disorder, being honest with myself regarding my challenges, and finding the areas where I had strengths so I could become even stronger in those areas. I also give presentations in some schools here in my community to educate children about autism spectrum disorders.

I was asked to share my coping tips with the readers of this blog. So, here goes…



Below are THE TOP 10 most important things I do – or have done – that have helped me to lead a relatively ‘normal’ life. I trust that you will find something here that will help you, too.

How to live with Asperger’s:

1. When I first learned that I was on the autism spectrum, I consulted Mark Hutten, M.A. to learn more about Asperger’s. He developed a treatment plan to assist me with daily living skills, and he helped me to develop a few crucial social skills. For example, how to converse with people in different social situations, how to engage in small talk, how to show an interest in the other person’s area of interest instead of droning on about my favorite topic, just to name a few.

2. I learned that when someone is talking about a problem in their life, they are not necessarily asking me how to solve it (even if I have the answer). As an alternative to offering solutions, I simply ask them how they feel about the issue or what they have already tried – or are considering trying – to solve the problem. This lets them know I do have empathy, and respect their ability to solve their own difficulties.
 

3. I try to talk “with” people rather than "talking at" them. I used to go on and on about one topic until the listener simply excused himself/herself. I think a good ratio in a one-on-one conversation is to talk about 30% of the time and listen about 70% of the time. I try not to talk for more than a few minutes at a time, and I let the other person set the pace of the conversation.

4. Since I don't always pick up nonverbal cues about other people's feelings, I simply ask if they are interested or have time to listen before I launch into an elaborate conversation on my favorite topic.

5. I’ve learned the importance of maintaining eye contact, but without staring. The best way I achieve this is to look at the person’s right eye briefly, and then shift to their left eye. This is followed by a few seconds of no eye contact.

6. I’m a member of several clubs that feature activities of interest to me (I’m a big civil war history buff).

7. I don’t discuss sensitive topics. For example, if someone wants to know about my disorder, I keep my explanations rather short and sweet without revealing the areas I struggle in. I’ve discovered that some people will use the information against you. If you self-disclose too much regarding the deficits associated with the disorder, some people may feel they have license to correct or berate you.

8. I’ve learned to pay attention to the “anxiety-triggers” that often launch me into a meltdown. For example, bright lights, crowded stores, loud sounds, unexpected changes in routine, just to name a few. I avoid – or at least minimize – these situations.

9. In addition to knowing my triggers, I also have learned to pay attention to the behaviors I exhibit when I am in the process of “flipping-out” (sometimes I start to pace, talk more rapidly or less coherently, fidget, or rock back and forth). When these signs appear, I try to find a quiet spot, breathe regularly and deeply, relax, and focus on pleasant thoughts. This usually prevents – or at least minimizes – my meltdowns.

10. I’ve saved the best for last: Prayer and a strong Faith. Honestly, I don’t know how people who don’t have God in their life cope in this crazy-ass world we live in today. The world is going to hell in a hand basket as far as I’m concerned. Country music singer Billy Currington said it best: "God is great, beer is good, and people are crazy."

Peace to all my ASD brothers and sisters out there,

Carlos

Resources for Neurodiverse Couples:

==> Online Group Therapy for Men with ASD

==> Online Group Therapy for NT Wives

==> Living with ASD: eBook and Audio Instruction for Neurodiverse Couples 

==> One-on-One Counseling for Struggling Individuals & Couples Affected by ASD

==> Online Group Therapy for Couples Affected by Autism Spectrum Disorder

==> Cassandra Syndrome Recovery for NT Wives

==> ASD Men's MasterClass: Social-Skills Training and Emotional-Literacy Development

 
Comments:

•    Unknown …Hi Carlos, I am 53 years old, and want to thankyou for your tips and coping strategies. I concur with all but one, you may have guessed already that it is number 10. I would love to discuss/debate my most favourite of subjects with you. I understand if you are unable to do so though. When it comes to that particular subject it is like everything else in my life, subject to logic and reason, and evidence. I learn as I grow, and grow as I learn. I heard it said, "Life is for learning and learning is for Life." I believe it is my Autism that has caused me to be able to see the Truth amongst many lies. A good friend said "If you throw a straight stick in amongst a pile of twigs, it will be very easy to spot. (I don't normally do this by the way Carlos,) but I am intrigued by your being a man of mature years, Autistic, and 'Religious' Finally Carlos, did you know . . . . "Many say the etymology of religion lies with the Latin word religare which means “to tie, to bind.” This seems to be favoured on the assumption that it helps explain the power religion has. The Oxford English Dictionary points out, though, that the etymology of the word is doubtful." I think this is quite interesting for various different reasons, that I would explain in detail should we correspond in the future. Regards, Hendrow.
•    CyndiL PhillyGirl…Dear Carlos, My name is Cyndi. I was diagnosed with Aspergers and anxiety disorder with mild OCD when I was in my 4os. I feel that the diagnosis has been a revelation to me. I now know why my mother, siblings, and were atypical but burdoned with other maladies like addiction disorders.
•    Unknown… Dear Carlos, thank you for sharing this deep and thought provoking discussion. I have been learning more about the condition seeing that I work with so many people on the spectrum. Their brilliance and individually is extraordinary. A late diagnosis would certainly have been a great relief with so many things suddenly explained at last. kind regards and ongoing brilliance to you and your life.
•    UKRonnie …Thank you for the tips. Number 2 is especially useful for me, not only in not offending others but also not constantly being used to fix things for others, to the point that I don't sort my own stuff, which I find hard enough. Also number 7 is intriguing. I suppose it is about who to trust although I am happy to tell people to jog on if they try using my difficulties against me and start spouting ableist claptrap.
•    Jake … Wow! This helped me son much! I’m printing it out so I can memorize it. The social challenges have held me back so much! I’m a musician and people love my music. However, dealing with me is hard for people and I get shelved a lot because of it. Thank you for helping so many! I felt so alone and now I see I am not!
•    ADIV123 …this was very helpful thank you i am an 11 year old boy named Aditya Vij and i too have Autism.

ASD and The Marriage Problems That Are To Be Expected



More Resources:

==> Living With Aspergers: Help for Couples 

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism  

==> Online Group Therapy for Couples and Individuals Affected by Autism Spectrum Disorder 

==> Online Group Therapy for NT Wives

==> Online Group Therapy for Men with ASD

 

Points to consider:


1.    Neurodiverse couples can use a visual system, such as a wipe off board to communicate their stress level at this time of day.
 

2.    Each person with ASD presents differently with his or her challenges.
 

3.    Encourage humor in your life together.
 

4.    Executive function deficits may be mistakenly attributed to lack of motivation, and/or behavior or personality problems.
 

5.    Executive function tasks include planning, organizing, prioritizing, time management, emotional regulation and impulse control.
 

6.    Eye contact may be difficult and sometimes facial expressions may not reflect an individual’s true feelings.
 

7.    Finding a path to a respectful, loving and fulfilling long lasting relationship is every committed couple’s desire.
 

8.    In a relationship where one individual is on the autism spectrum, there are likely many more opportunities for misunderstandings and frustration.
 

9.    Individuals on the autism spectrum are not sure how to connect with others.
 

10.    Individuals on the autism spectrum can have both an impaired and an enhanced time perceiving their own bodily functions.
 

11.    Inertia, both starting and stopping tasks, can be a challenge for people on the autism spectrum.
 

12.    Information processed by the senses can easily overstimulate an individual on the autism spectrum.
 

13.    It is a challenge for most couples to find a balance between their needs and expectations, and their partner’s needs and expectations.
 

14.    It is important that you both learn your personal ways of de-stressing and express these needs to each other.
 

15.    Just as in any relationship, individuals with ASD need partners who are understanding and respectful of their needs.
 

16.    Leisure time together can be an important bonding opportunity.
 

17.    Light touch may feel like pins yet actual pinpricks may not be felt at all.
 

18.    Many people with autism crave intimacy and love, but they don't know how to achieve it in a romantic relationship.
 

19.    NT partners are often relied upon to perform many executive function tasks within the relationship.
 

20.    People on the autism spectrum suffer from anxiety.
 

21.    People with ASD almost universally say it is difficult to process verbal information while maintaining eye contact.
 

22.    Persons on the autism spectrum often have trouble staying on topic and maintaining a conversation.
 

23.    Realize you might not understand your partner’s perspective.
 

24.    Remembering the positive characteristics of both you and your partner will enhance your self-esteem and help motivate you as you work through your relationship challenges.
 

25.    Senses may be overly sensitive (hypersensitive) and/or under sensitive (hyposensitive).
 

26.    Sensory issues can impact just about all aspects of life from the selection of clothes, foods, bedding and furnishings that are comfortable for both partners to what environments and activities may be enjoyable for both partners.
 

27.    Sensory issues very often affect individuals on the autism spectrum.
 

28.    Sitting side by side might work best for communication.
 

29.    Social cues are often missed or misread.
 

30.    Social events are often difficult for a person with ASD and you will likely be the one arranging the social events.
 

31.    Social skills are affected.
 

32.    Some couples find that texting, emails and/or information written out on paper, sticky notes, calendars or wipe-off boards is very advantageous.
 

33.    Some people with ASD are hypersensitive to various lighting.
 

34.    They can feel blind to everyday subtle social cues from their partner, which can cause conflict and hurt feelings.
 

35.    They may seem unaware of what is in plain sight and/or process words as “noise”.
 

36.    Transitioning from work to home may be stressful for your partner on the autism spectrum.
 

37.    Verbal communication is often processed more slowly and words interpreted literally.
 

38.    You and your partner likely have different ways of alleviating stress.
 

39.    You may need to give your partner with autism explicit information and practice on how to give hugs.
 

40.    Your partner likely has executive function deficits.
 

Introduction to Understanding “Spousal ASD”: Summary for Neurotypicals

Here's a good synopsis of what you can expect to witness in your spouse who has autism spectrum disorder (ASD):

Reasons for Rigidity in ASD—

  • the misunderstanding or misinterpretation of your feelings, thoughts, and actions
  • the violation of a rule or ritual (i.e., you, the NT, changing something from the way it is “supposed to be” … you violating a rule, and this is unacceptable to him)
  • anxiety about a current or upcoming event (no matter how trivial it might appear to you)
  • the need for immediate gratification of a need
  • lack of knowledge about how something with social/emotional components is done (by not knowing how the world works with regard to specific social situations and events, he will become anxious and try to reduce his anxiety, which often results in shutdowns or meltdowns)
  • sensory sensitivities
  • the need to avoid or escape from a non-preferred activity (often something difficult or undesirable) 
  • perfectionism
  • OCD tendencies
  • the need to control people for anxiety-reduction reasons
  • the need to engage in - or continue - a preferred activity (usually an obsessive action or fantasy)
  • transitioning from one activity to another (this is usually a problem because it may mean ending an activity before he is finished with it)


Black-and-White Thinking and Mind-blindness—

  • an obsessive-compulsive approach to life that results in the narrow range of interests and insistence on set routines
  • the inability to take your perspective (i.e., mind-blindness)
  • the lack of cognitive flexibility (i.e., black-and-white thinking)
  • there is always some distress, anxiety, or obsession manifested in every “inappropriate” behavior that you, the NT, may witness
  • cognitive difficulties that lead to inaccurate interpretations and understanding of the emotional world (how he interprets a situation determines how he will respond to it, but many times the interpretation of an event is not an accurate one)


Behavioral Manifestations of Anxiety—

  • wanting things to go his way, when he wants them to, no matter what you may want (he may argue, ignore you, refuse to yield, etc.)
  • tending to conserve energy and put forth the least effort he can, except with highly preferred activities
  • remaining in a fantasy world a good deal of the time
  • appearing unaware of events around him
  • reacting poorly to new events, transitions, or changes
  • preferring to do the same things over and over
  • lecturing or scolding you rather than having a reciprocal conversation
  • intensely disliking loud noises and crowds
  • insisting on having things and/or events occur in a certain way
  • having trouble socializing well with you, or avoiding you altogether (he prefers to be alone, because you do not do things exactly as he does)
  • having a narrow range of interests
  • becoming fixated on certain topics and/or routines
  • eating a narrow range of foods
  • demonstrating unusual worries
  • showing resistance to directions from you, the NT
  • creating his own set of rules for doing something
  • becoming easily overwhelmed
  • having difficulty calming down


Questions NTs Should Ask Themselves Regarding Their ASD Spouse’s Behavior—

To help you determine the reasons why your ASD spouse acts the way he does, you should ask yourself the following questions:


1.  Is he misunderstanding what is happening and assuming something that isn't true? (Misinterpretation)
 

2.  Is he expecting perfection in himself? (Black-and-white thinking)
 

3.  Is he blaming me for something that is beyond my control? (He feels that you must solve the problem for him even when it involves issues you have no control over.)
 

4.  Is he stuck on an idea and can't let it go? (He does not know how to let go and move on when there is a problem.)
 

5.  Is he exaggerating the importance of an event? There are no small events, everything that goes wrong is a catastrophe. (Black-and-white thinking)
 

6.  Has he made a rule that can't be followed? (He sees only one way to solve a problem. He can’t see alternatives.)
 

7.  Does he see only two choices to a situation rather than many options? (Black-and-white thinking)
 

8.  Does he need to be shown a better way to deal with a problem? (He does not understand the way the social world works.)
 

9.  Because a situation was one way the first time, does he feel it has to be that way always? (Being rule bound)


More Resources:

==> Living With Aspergers: Help for Couples 

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism  

==> Online Group Therapy for Couples and Individuals Affected by Autism Spectrum Disorder 

==> Online Group Therapy for NT Wives

==> Online Group Therapy for Men with ASD

 

8 Things Every NT Woman Should Know About Her Autistic Spouse’s Brain

An autistic man's brain varies tremendously over his life span, quickly contradicting the image of the emotionally-distant, self-absorbed “nerd” that circulates in mainstream consciousness. From his task-oriented personality to his “excessive” need for time alone, here's what women need to know about their partner's mind:

1. “Men with Autism Spectrum Disorder (ASD) or High-Functioning Autism (HFA) are non-committal,” the refrain usually goes. But this may be one of the largest misconceptions about these men. The “fear of commitment” is most likely to occur before men hit 30. After that, most ASD men focus mostly on providing for their families (of course, some have a harder time with commitment than others – a problem that could be genetic).

2. “Autistic fathers don’t really bond with their children.”  This is another myth. While many of these fathers may occasionally (and unintentionally) give the impression that they are not very interested in “bonding” or spending quality time with their kids (which is due to mind-blindness issues), most will tell you – categorically – that they love their kids more than anything or anyone else. They just have difficulty conveying that love in a meaningful way.

3. “Men on the spectrum embrace chain of command.” True! An unstable hierarchy can cause these men considerable anxiety. An established chain of command (such as that practiced by the military and many work places) gives them a sense of control in an otherwise chaotic world.
 

4. “Men with ASD have no empathy and are more focused on solutions than feelings.” Yes and no! While many studies suggest that females are more empathetic than males, this is not entirely true. The empathy system of the autistic male brain DOES respond when someone is stressed or expressing a problem – but the task-oriented, "fix-it" region quickly takes over.  As a result, these men tend to be more concerned with fixing a problem than showing solidarity in feeling.


5. “These men are hard-wired to check-out other women.” Maybe. While often linked to aggression and hostility, testosterone is also the hormone of the libido. And ALL men (not just those on the autism spectrum) have six times the amount surging through their veins as women. Testosterone impairs the impulse-control region of the brain. While it has yet to be studied, this may explain why men ogle women as if on "auto-pilot." However, most ASD men forget about the woman once she is out of their visual field.

6. “The ASD man is immature for his age.” Of course! He has a “developmental disorder” after all. This simply means he is emotionally and socially lagging behind his peers. But even “late-bloomers” develop a significant element of experience and wisdom over time.

7. “Men with ASD don’t show their emotions.” False. While women are usually considered the more emotional gender, infant boys are more emotionally reactive and expressive than infant girls. Adult men have slightly stronger emotional reactions, too – BUT ONLY BEFORE THEY ARE AWARE OF THEIR FEELINGS. Once the emotion reaches consciousness, most men adopt a poker face. When young, males likely learn to hide emotions that culture considers "unmanly."

8. “These men are vulnerable to loneliness and anxiety.” Unfortunately, this is spot on. While loneliness, depression and anxiety can take a toll on everyone's health and brain, Men on the spectrum seem particularly vulnerable. These males tend to “reach out” less than neurotypical males, which exacerbates the emotional problems and the toll it takes on their brains' social circuits. Living with women is particularly helpful for autistic men. Men in stable relationships tend to be healthier, live longer, and have hormone levels that decrease anxiety. Having “time alone” to de-stress is also especially beneficial for men on the spectrum.

How to Identify Your "Meltdown Triggers": Tips for People on the Autism Spectrum

"Is it possible to learn my 'triggers' that may cause meltdowns, and is there a way to intervene before the meltdowns happen?"

People with ASD tend to “act out” their uncomfortable emotions. This is how they communicate their discomfort. The message of a meltdown is: “I’m frustrated and upset, and I don’t know what lead up to it - or what to do about it.”

If you are prone to the periodic meltdown, know that it is very possible to find a way to understand your frustrations – and change the inappropriate expression of them!

 
 

 
Here are some important tips that will help you recognize your “meltdown triggers” so you can prevent the meltdown from happening in the first place:

1. Transitional experiences: When you move from a “desired” activity to one that is NOT desired – especially when the transition is unexpected (e.g., from playing a computer game to running an unexpected errand for your spouse), it’s a prime opportunity for a meltdown. Many transitional experiences can erupt into meltdowns, because you probably don’t like change. You find the transition difficult. It may not be that you don’t want to run an errand for your spouse, rather it could be that you are protesting at having to “switch gears”!

So, when possible, give yourself time to adjust when change occurs. Of course, this is easier said than done when we live in a rush. But you do need more time than “neurotypicals” (e.g., in the morning, you may need to stay in his pajamas for a little while before getting dressed). Also, ask your spouse to “prepare” you for transitions as often as possible. For example, she could say, “I may need you to run an errand for me later today around 3 PM.”
 
==> Living With Aspergers: Help for Couples

2. Tiredness, hunger and sickness: When you are tired, hungry or sick, you are running on lower emotional resources to cope with normal expectations. This means that if tired or hungry or sick, where you would normally be happy to meet your spouse’s requests, you will likely be short-tempered. Thus, do what you can to deal with the primary issue – get some sleep, eat a meal, see the doctor etc. Try not to get hooked into power struggles when you are low on emotional resources.

3. Implement self-observation: When you are calm, ask your spouse to let you know what she observes regarding the connection between your triggers and your meltdowns. For example, she might say, “I’ve noticed that when you think something is unfair, you get upset and start yelling”). By using your spouse to help you to “connect the dots,” you are learning to identify your triggers. This technique should be part of a problem-solving discussion (that includes you and your spouse) for coming up with a plan for what you will do differently the next time you are in this dilemma.

4. Signaling: Signaling is a common behavior modification strategy for people on the autism spectrum. Choose one specific trigger to work on, and then come up with a phrase or hand signal that your spouse can use as an alert to you that the trigger is present. This allows your spouse to make you aware of the trigger subtly in social situations. Once she has alerted you, you will have the chance to self-correct.

5. Reliance on routine: People with ASD tend to rely heavily on routines to keep them comfortable and content. In fact, most are dependent on routines, because too much activity and change can overwhelm them. A change in routine is a major meltdown trigger that can easily set you off.

Thus, try sticking to daily routines as precisely as possible. If you do have to change the routine, make sure you are well-rested and content. If you notice you are starting to exhibit signs of a meltdown, try to find a quiet place to calm down.
 
==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

6. Over-stimulation: Although many people on the spectrum enjoy going out to eat, going to malls, attending parties, etc. – it can get quite overwhelming for them to the point they start reacting to these unfamiliar surroundings and faces. Many will exhibit frustration simply because “the unfamiliar” gets to them, especially if there are a lot of foreign noises and smells. Thus, if the environment seems too “sensory-unfriendly,” you may simply want to “bail out” and return home for a time out.

7. Internal frustration: Some people with autism tend to be perfectionistic and obsessive. The inability to do something right after several attempts, or the lack of conversational skills to get your point across can get the “meltdown engine” revving.


Observations from your spouse is the best tool for identifying “low frustration-tolerance” in yourself. Ask your spouse to pay attention and be aware of the warning signs. She can keep her eyes and ears open, and can help you to look for patterns and connections.

8.  Identifying physical symptoms: Often there are physical symptoms that go along with impending meltdowns. Your nervous system kicks into high gear when a trigger is present - and can cause several identifiable sensations (e.g., rapid heartbeat, flushed cheeks, rapid breathing, cold hands, muscle tension, etc.).

What do you feel in your body when the trigger you are experiencing is present? When you are aware of the warning signs your body gives you, it can serve as a natural cue to put the new plan you came up with during your problem-solving discussions into action.

9. Dealing with anger: Since “meltdown triggers” and “angry feelings” are directly related, having discussions with your spouse about anger (during those times when you are calm) can help you establish a foundation to build on when identifying your triggers. Ask yourself some important questions about emotions (e.g., what makes me angry, happy, sad, etc.).

The purpose of this is to learn how to identify various feelings, to learn what it means to feel angry, happy, sad, disappointed, etc. - but not to give you an excuse for “acting-out” behavior.  This also helps you to communicate your feelings to your spouse clearly so that she is in the best position to help you cope in high-anxiety situations.



Helping Your ASD Spouse with Anger-Control: Tips for Neurotypical Partners

All of us exhibit some "signs" just as we begin to act-out in the form of anger. Thus, it is possible to identify the anger signs in your ASD spouse. For example, you may detect a certain look in the eye, the tone of voice, or the tightness in the body. NT partners can help their spouse observe these signs right at the onset of anger. Once he can identify the early signs, he can also learn to diffuse it.

Anger has 3 components—

1. The Emotional State of Anger: The first component is the emotion itself, defined as an affective or arousal state, or a feeling experienced when a goal is blocked or needs are frustrated.


2. Expression of Anger: The second component of anger is its expression. Some people on the spectrum are known to express anger through “shutting down” - but do little to try to solve a problem or constructively confront the NT. Others actively resist by verbally defending their positions – and may retaliate against the NT. 


3. An Understanding of Anger: The third component of the anger experience is understanding (i.e., interpreting and evaluating the emotion). Because the ability to self-regulate the expression of anger is linked to an understanding of the emotion – and because the ability to reflect on anger is somewhat limited in ASD – they may need guidance from their NT spouse in totally understanding and managing their feelings.

==> Living With Aspergers: Help for Couples
 
Tips for NTs—

1.    Ask your ASD spouse if you can give him a "signal" (e.g., a hand motion) when he is starting to get “wound-up.” Give that signal as soon as he starts "stewing" about something.

2.    How about YOUR own anger in response to your ASD spouse's anger? You can set an example of “anger control” for him. No coaching technique is as effective as "modeling" with your own example.

3.    Some people on the autism spectrum get upset when they know they made a mistake. Instead of admitting their mistake, they act-out in anger to deflect the attention off them. If you realize that this may be the case, it's helpful to say to your ASD partner, "Everyone makes mistakes. Can we just focus on a possible solution for now?"

4.    The thought "you’re disrespecting me" …or “you’re treating me like a child” is a big anger-arouser for many people on the autism spectrum. If that is the case, ask him or her, "Do you feel you are being treated unfairly?" When your spouse answers the question, listen and don't rush to negate his/her feelings.

People on the spectrum guided toward responsible anger-management are more likely to understand and manage angry feelings directly and non-aggressively - and to avoid the anxiety that often accompanies poor anger-control. 

 



Some NT spouses will view "helping with anger-control" as micro-managing, and may even resent the notion - which is unfortunate! But if you are willing, you can take some of the bumps out of understanding and managing anger by working WITH your ASD spouse (e.g., providing signals, modeling anger-control, being-solution focused, validating, etc.) rather than AGAINST him (e.g., getting angry with him for being angry).

 

Why People on the Autism Spectrum Are So Anxious

“Mark: You say that anxiety is a prominent feature of ASD. What is the biological reason for this?”

*** Click on image to enlarge. ***

 

Biology is just one contributor. People with ASD are particularly vulnerable to anxiety due to a breakdown in circuitry related to extinguishing fear responses, specific neurotransmitter system defects, and the inability to make good social judgments throughout the lifespan.

People with certain personality traits are more likely to have anxiety – with or without ASD. For example, those who are perfectionists, easily frustrated, shy, lack self-esteem, or need to control everything often develop anxiety during childhood and adolescence, which progresses into adulthood.

Anxiety, in general, is more prominent today than a generation ago, for people on - and off - the autism spectrum. The newly recognized increase in anxiety disorders may be the result of poor diet (due to the abundance of fast food/junk food), social media, poor sleep habits, lowered stigma, and under-reporting in the past.

Also, there are a multitude of other sources that can be triggering one’s anxiety (e.g., traumatic past experience, medical conditions, job or personal relationship problems, genetics, environmental factors such as pollution, etc.).

Furthermore, some people worry more than others because they are more emotionally sensitive. Emotionally sensitive people tend to label a moderately bad situation as “devastating,” or may take neutral comments made by others as acute criticism.

Other reasons for anxiety in people with ASD include:

  • being rejected or teased by others, but not having the ability to mount an effective socially adaptive response
  • recognizing that others “get it” when they do not 
  • few - or no - coping strategies for soothing themselves and containing difficult emotions 
  • lack of empathy, which severely limits skills for autonomous social problem-solving 
  • limitations in their ability to grasp social cues and a highly rigid style of thinking, which act in concert to create repeated social errors
  • limitations in generalizing from one situation to another, which often contributes to repeating the same mistakes


More resources for couples affected by ASD: 

==> Living With Aspergers: Help for Couples

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

Will Your ASD Partner's Anger-Control Issues Be a Life-Long Problem?

 “Are people on the autism spectrum usually prone to angry outbursts? I recently discovered that my boyfriend has traits of ASD and need to know if his ‘anger control’ issue is going to be an ongoing problem for us.”

 


People with ASD are prone to anger, which can be made worse by difficulty in communicating feelings of anxiety. Anger is often a common reaction experienced when coming to terms with problems in relationships (i.e., things that occur that raise the ASD individual’s stress level).

There can be an ‘on-off’ quality to this anger where the individual is calm minutes later after an angry outburst (e.g., meltdown), while those around are stunned and may feel hurt or shocked for hours, if not days, afterward.

The NT partner often struggles to understand these angry outbursts, with resentment and bitterness building up over time. Once the NT understands that her ASD partner has trouble controlling his anger - or understanding its effects on others - she can learn ways to respond that will help to manage these outbursts (i.e., to keep them from escalating).

In some cases, the person on the spectrum may not acknowledge that he has trouble with his anger - and will blame his NT partner for provoking him. Again, this can create enormous conflict within the relationship. It will take carefully phrased feedback and plenty of time for the ASD partner to gradually realize he has a problem with how he expresses his anger and frustration.

A good place to start is identifying a pattern in how the outbursts are related to specific frustrations. Such triggers may originate from the environment, specific individuals, or internal thoughts. Common causes of anger in people with ASD include: other people’s behavior (e.g., critical comments); intolerance of imperfections in others; having routines and order disrupted; anxiety; being swamped by multiple tasks or sensory stimulation.

Identifying the cause of anger can be a challenge.  It is important to consider all possible influences relating to one’s physical state (e.g., pain, tiredness), mental state (e.g., existing frustration, confusion), the environment (e.g., too much stimulation, lack of structure, change of routine), and how well the ASD individual can regulate difficult emotions. Life-coaching and Neurodiverse Couples Counseling can help in this area.

 

 


More resources for couples affected by ASD: 

==> Living With Aspergers: Help for Couples

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

Self-Help Tips for ASD-Related Anxiety: Tips for Spouses on the Autism Spectrum

“Mark: You state in your videos that ‘autism-related anxiety’ is possibly the #1 contributor to relationship problems. What can I do as a husband with ASD to reduce my own anxiety?”


You are correct. Anxiety is a common problem in ASD. In fact, in some cases it is the MAIN emotion for people on the spectrum. Some studies reveal that up to approximately 85% of people with ASD met the full criteria of at least one anxiety disorder.

Many people on the spectrum report intense feelings of anxiety that may reach a level where treatment is required. For some, it is the treatment of their anxiety disorder that leads to a diagnosis of ASD. People with ASD are particularly prone to anxiety as a consequence of the social demands made on them. Also, changes to daily routine can exacerbate the anxiety, as can sensory sensitivities.

One way these individuals cope with their anxiety is to retreat into their special interest. Their level of preoccupation with the special interest can be used as a measure of their degree of anxiety. The more anxious you are, the more intense your interest. Anxiety can also increase your rigidity in thought processes and insistence on set routines.

One of the best ways to treat anxiety in ASD is through the use of behavioral techniques. This may involve your NT spouse (and others) looking out for recognized symptoms (e.g., meltdowns, shutdowns, the need to isolate, etc.) as an indication that you are anxious. You will need to learn how to recognize these symptoms yourself (although you might need prompting from others).

Specific events may also trigger anxiety. When certain events (internal or external) are recognized as a sign of imminent anxiety, action can be taken (e.g., relaxation, distraction, physical activity, etc.). The choice of relaxation method depends very much on your unique needs.

Some techniques include: meditation; using positive thoughts; the use of photographs, postcards or pictures of a pleasant or familiar scene (these need to be small enough to be carried around and should be laminated in order to protect them); physical activities (e.g., going for a long walk perhaps with your dog, doing physical chores around the house, etc.); massage; deep breathing; and aromatherapy. It’s best to practice whatever method of relaxation is chosen at frequent and regular intervals in order for it to be of any practical use when your anxiety occurs.

Whatever method is chosen to reduce anxiety, it is crucial to identify the cause. This should be done by careful monitoring of the “antecedents” (i.e., the thing(s) that happens before the anxiety manifests itself) to an increase in anxiety. The key issues to address when considering this strategy are: What can be done to eliminate the problem (i.e., the antecedent)? What can be done to modify the anxiety-producing situation if it can’t be eliminated entirely? Will the antecedent strategy need to be permanent, or is it a temporary "fix" which allows me to increase skills needed to manage the anxiety in the future?

The importance of using antecedent strategies should not be underestimated. People on the autism spectrum often have to manage a great amount of personal stress. Striking a balance of short and long-term accommodations through manipulating antecedents to anxiety - and the subsequent relationship problems - is often crucial in setting the stage for later skill development.

 


==> https://aspergers-anxiety.blogspot.com <==

 

More resources for couples affected by ASD: 

==> Living With Aspergers: Help for Couples

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism




Is Your Partner or Spouse on the Autism Spectrum? - Comprehensive List of Traits Associated with ASD


You think your partner or spouse may have autism? This comprehensive list will give you a better clue. Here you will find the majority of symptoms associated with autism spectrum disorder (ASD) – level 1. The individual will not usually have ALL of these traits, however:


1.    An awkward gait when walking or running
2.    Anxiety
3.    Averts eye contact, or keeps it fleeting or limited
4.    Avoids eye contact altogether
5.    Benefits from schedules, signs, cue cards
6.    Can only focus on one way to solve a problem, though this solution may be ineffective
7.    Can recognize smells before others
8.    Can’t allow foods to touch each other on the plate
9.    Can't extend the allotted time for an activity; activities must start and end at the times specified
10.    Carries a specific object
11.    Complains of a small amount of wetness (e.g., from the water fountain, a small spill)
12.    Complains of clothing feeling like sandpaper
13.    Compromises interactions by rigidity, inability to shift attention or “go with the flow,” being rule bound
14.    Confronts another person without changing her face or voice
15.    Continues to engage in an ineffective behavior rather than thinking of alternatives

==> Living With Aspergers: Help for Couples

16.    Covers ears when certain sounds are made
17.    Creates jokes that make no sense
18.    Creates own words, using them with great pleasure in social situations
19.    Difficulties with fine motor skills
20.    Difficulties with gross motor skills
21.    Difficulty accepting new clothing (including for change of seasons)
22.    Difficulty applying sufficient pressure when writing, drawing
23.    Difficulty coordinating different extremities, motor planning
24.    Difficulty discriminating between fact and fantasy
25.    Difficulty in auditory areas

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

26.    Difficulty in gustatory areas
27.    Difficulty in olfactory areas
28.    Difficulty in tactile areas
29.    Difficulty in visual areas
30.    Difficulty incorporating new information with previously acquired information (i.e., information processing, concept formation, analyzing/ synthesizing information), is unable to generalize learning from one situation to another, may behave quite differently in different settings and with different individuals
31.    Difficulty initiating, maintaining, and ending conversations with others
32.    Difficulty maintaining the conversation topic
33.    Difficulty understanding the meaning conveyed by others when they vary their pitch, rhythm, or tone
34.    Difficulty using particular materials (e.g., glue, paint, clay)
35.    Difficulty when novel material is presented without visual support
36.    Difficulty when throwing or catching a ball
37.    Difficulty when touched by others, even lightly (especially shoulders and head)
38.    Difficulty with any changes in the established routine
39.    Difficulty with clothing seams or tags

==> Living With Aspergers: Help for Couples


40.    Difficulty with direction following
41.    Difficulty with handwriting
42.    Difficulty with independently seeing sequential steps to complete finished product
43.    Difficulty with motor imitation skills
44.    Difficulty with organizational skills (e.g., What do I need to do, and how do I go about implementing it?)
45.    Difficulty with Reciprocal Social Interactions
46.    Difficulty with rhythm copying
47.    Difficulty with sequencing (e.g., What is the order used to complete a particular task?)
48.    Difficulty with task completion
49.    Difficulty with task initiation
50.    Difficulty with transitions

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

51.    Displays a delay when answering questions
52.    Displays a lack of desire to interact
53.    Displays a lack of empathy for others and their emotions (e.g., takes another person’s belongings)
54.    Displays a limited awareness of current fashion, slang, topics, activities, and accessories
55.    Displays a limited awareness of the emotions of others and/or how to respond to them
56.    Displays a strong need for perfection, wants to complete activities/assignments perfectly (e.g., his standards are very high and noncompliance may stem from avoidance of a task he feels he can't complete perfectly)
57.    Displays a strong olfactory memory
58.    Displays abnormal gestures/facial expressions/body posture when communicating
59.    Displays an inability to focus when surrounded by multiple sounds (e.g., shopping mall, airport, party)
60.    Displays anxiety when touched unexpectedly
61.    Displays average or above average intellectual ability
62.    Displays average or above average receptive and expressive language skills
63.    Displays difficulty analyzing and synthesizing information presented
64.    Displays difficulty as language moves from a literal to a more abstract level
65.    Displays difficulty monitoring own behavior
66.    Displays difficulty sustaining attention and is easily distracted 

==> Online Group Therapy for Couples and Individuals Affected by Autism Spectrum Disorder

 
67.    Displays difficulty understanding not only individual words, but conversations
68.    Displays difficulty with inferential thinking and problem solving (e.g., completing a multi-step task that is novel)
69.    Displays difficulty with problem solving
70.    Displays difficulty with volume control (i.e., too loud or too soft)
71.    Displays discomfort/anxiety when looking at certain pictures (e.g., the person feels as if the visual experience is closing in on him)
72.    Displays extreme fear when unexpected noises occur
73.    Displays high moral standard
74.    Displays rigid behavior
75.    Displays rigidity in thoughts and actions
76.    Displays strong letter recognition skills
77.    Displays strong number recognition skills
78.    Displays strong oral reading skills, though expression and comprehension are limited
79.    Displays strong spelling skills
80.    Displays strong word recognition skills
81.    Displays unusual chewing and swallowing behaviors
82.    Distractable and has difficulty sustaining attention
83.    Does not appear to comprehend the facial expressions of others
84.    Does not appear to comprehend the gestures/body language of others
85.    Does not ask for help with a problem
86.    Does not ask for the meaning of an unknown word

==> Living With Aspergers: Help for Couples

 
87.    Does not inquire about others when conversing
88.    Does not make conversations reciprocal (i.e., has great difficulty with the back-and-forth aspect), attempts to control the language exchange, may leave a conversation before it is concluded
89.    Does not observe personal space (is too close or too far)
90.    Does not respond to temperature appropriately
91.    Does not turn to face the person he is talking to
92.    Does not use gestures/body language when communicating
93.    Easily activated gag/vomit reflex
94.    Emotional responses out of proportion to the situation, emotional responses that are more intense and tend to be negative (e.g., glass half-empty)
95.    Engages in competing behaviors (e.g., vocalizations, noises, plays with an object, sits incorrectly, looks in wrong direction)
96.    Engages in intense staring
97.    Engages in obsessive questioning or talking in one area, lacks interest in the topics of others
98.    Engages in repetitive/stereotypical behaviors
99.    Engages in self-stimulatory behaviors (e.g., hand movements, facial grimaces)
100.    Engages in self-stimulatory or odd behaviors (rocking, tics, finger posturing, eye blinking, noises — humming/clicking/talking to self)

 

 

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

101.    Excellent rote memory
102.    Fails to assist someone with an obvious need for help (not holding a door for someone carrying many items or assisting someone who falls or drops their belongings)
103.    Fails to inquire regarding others
104.    Failure to follow rules and routines results in behavioral difficulties

105.    Fearful of the sounds particular objects make (e.g., vacuum, blender)
106.    Feels need to complete projects in one sitting, has difficulty with projects completed over time
107.    Few interests, but those present are unusual and treated as obsessions
108.    Finds some smells so overpowering or unpleasant that he becomes nauseated
109.    Focuses conversations on one narrow topic, with too many details given, or moves from one seemingly unrelated topic to the next
110.    Focuses on special interests
111.    Frustration if writing samples are not perfectly identical to the presented model
112.    Has a large vocabulary consisting mainly of nouns and verbs
113.    Has a set routine for how activities are to be done
114.    Has a voice pattern that is often described as robotic
115.    Has an extensive fund of factual information
116.    Has an unusual pencil/pen grasp
117.    Has developed narrow and specific interests; the interests tend to be atypical (note: this gives a feeling of competence and order; involvement with the area of special interest becomes all-consuming)
118.    Has difficulty shifting from one channel to another; processing is slow and easily interrupted by any environmental stimulation (i.e., seen as difficulty with topic maintenance). This will appear as distractibility or inattentiveness

==> Online Group Therapy for Couples and Individuals Affected by Autism Spectrum Disorder


119.    Has difficulty with feelings of empathy for others. Interactions with others remain on one level, with one message
120.    Has rules for most activities, which must be followed (this can be extended to all involved)
121.    Has specific strengths in cognitive areas
122.    Has tics or facial grimaces
123.    Has unusual fears
124.    Ignores an individual’s appearance of sadness, anger, boredom, etc.
125.    Impaired reading comprehension; word recognition is more advanced (e.g., difficulty understanding characters in stories, why they do or do not do something)
126.    Impairment in prosody
127.    Impairment in the pragmatic use of language
128.    Impairment in the processing of language
129.    Impairment in the semantic use of language
130.    Inability to prevent or lessen extreme behavioral reactions, inability to use coping or calming techniques
131.    Increase in perseverative/obsessive/rigid/ritualistic behaviors or preoccupation with area of special interest, engaging in nonsense talk
132.    Inflexible thinking, not learning from past mistakes (note: this is why consequences often appear ineffective)
133.    Insistence on Set Routines
134.    Interprets known words on a literal level (i.e., concrete thinking)
135.    Interrupts others
136.    Is not aware of the consequences of his “hurtful” behavior
137.    Is oversensitive to environmental stimulation (e.g., changes in light, sound, smell, location of objects)
138.    Is unable to accept environmental changes (e.g., must always go to the same restaurant, same vacation spot)
139.    Is unable to change the way he has been taught to complete a task

140.    Is unable to focus on group goals when he is a member of the group
141.    Is unable to make or understand jokes/teasing
142.    Is unable to select activities that are of interest to others (unaware or unconcerned that others do not share the same interest or level of interest, unable to compromise)
143.    Is unaware he can say something that will hurt someone's feelings or that an apology would make the person "feel better" (e.g., tells another person their story is boring)
144.    Is unaware of unspoken or “hidden” rules — may “tell” on peers, breaking the “code of silence” that exists. He will then be unaware why others are angry with him
145.    Is unaware that others have intentions or viewpoints different from his own; when engaging in off-topic conversation, does not realize the listener is having great difficulty following the conversation
146.    Is unaware that others have thoughts, beliefs, and desires that influence their behavior
147.    Is under-sensitive to environmental stimulation (e.g., changes in light, sound, smell, location of objects)
148.    Knows how to make a greeting, but has no idea how to continue the conversation; the next comment may be one that is totally irrelevant
149.    Lack of appreciation of social cues
150.    Lack of cognitive flexibility
 

 ==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism


151.    Lacks awareness if someone appears bored, upset, angry, scared, and so forth. Therefore, she does not comment in a socially appropriate manner or respond by modifying the interaction
152.    Lacks awareness of the facial expressions and body language of others, so these conversational cues are missed. He is also unable to use gestures or facial expressions to convey meaning when conversing. You will see fleeting, averted, or a lack of eye contact. He will fail to gain another person's attention before conversing with her. He may stand too far away from or too close to the person he is conversing with. His body posture may appear unusual
153.    Lacks conversational language for a social purpose, does not know what to say — this could be no conversation, monopolizing the conversation, lack of ability to initiate conversation, obsessive conversation in one area, conversation not on topic or conversation that is not of interest to others
154.    Lacks facial expressions when communicating

155.    Lacks the ability to understand, attend to, maintain, or repair a conversational flow or exchange — this causes miscommunication and inappropriate responses (unable to use the back-and-forth aspect of communication)
156.    Laughs at something that is sad, asks questions that are too personal
157.    Limited or abnormal use of nonverbal communication
158.    Looks to the left or right of the person she is talking to
159.    Makes comments that may embarrass others
160.    Makes limited food choices
161.    Makes rude comments (tells someone they are fat, bald, old, have yellow teeth)
162.    Meltdowns (e.g., crying, aggression, property destruction, screaming)
163.    Must eat each individual food in its entirety before the next
164.    Narrow clothing preferences
165.    Narrow food preferences
166.    Narrow Range of Interests

==> Online Group Therapy for Couples and Individuals Affected by Autism Spectrum Disorder

 
167.    Needs to smell foods before eating them
168.    Needs to smell materials before using them
169.    Needs to touch foods before eating them
170.    Non-compliant behaviors
171.    Observes or stays on the periphery of a group rather than joining in
172.    Once a discussion begins, it is as if there is no “stop” button; must complete a predetermined dialogue
173.    Only sits in one specific chair or one specific location
174.    Overreacts to pain
175.    Patterns, routines, and rituals are evident and interfere with daily functioning
176.    Plays games or completes activities in a repetitive manner or makes own rules for them
177.    Poor balance
178.    Poor impulse control
179.    Prefers factual reading materials rather than fiction
180.    Prefers structured over non-structured activities
181.    Purposely withdraws to avoid noises

182.    Rarely varies the pitch, stress, rhythm, or melody of his speech. Does not realize this can convey meaning
183.    Responds with anger when he feels others are not following the rules, will discipline others or reprimand them for their actions
184.    Rigidity issues tied in with limited food preferences (e.g., this is the food he always has, it is always this brand, and it is always prepared and presented in this way)
185.    Rules are very important as the world is seen as black or white
186.    Rushes through fine motor tasks
187.    Shows a strong desire to control the environment
188.    Sits apart from others, avoids situations where involvement with others is expected
189.    Smiles when someone shares sad news
190.     Socially and emotionally inappropriate behaviors
191.    Stands too close or too far away from another person
192.    Stands too close to objects or people
193.    Stares intensely at people or objects
194.    Takes perfectionism to an extreme
195.    Talks on and on about a special interest while unaware that the other person is no longer paying attention, talks to someone who is obviously engaged in another activity, talks to someone who isn’t even there
196.    Touches, hugs, or kisses others without realizing that it is inappropriate
197.    Under-reacts to pain
198.    Unsure how to ask for help, make requests, or make comments
199.    Uses conversation to convey facts and information about special interests, rather than to convey thoughts, emotions, or feelings
200.    Uses facial expressions that do not match the emotion being expressed

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

201.    Uses gestures/body language, but in an unusual manner
202.    Uses language scripts or verbal rituals in conversation, often described as “nonsense talk” by others (scripts may be made up or taken from movies/books/TV)
203.    Uses the voice of a movie or cartoon character conversationally and is unaware that this is inappropriate
204.    Uses visual information as a “backup” (e.g., I have something to look at when I forget), especially when new information is presented
205.    Uses visual information as a prompt
206.    Uses visual information to help focus attention (e.g., I know what to look at)
207.    Uses visual information to make concepts more concrete
208.    Uses visual information to provide external organization and structure, replacing the person’s lack of internal structure (e.g., I know how it is done, I know the sequence)
209.    Uses words in a peculiar manner
210.    Views the world in black and white (e.g., admits to breaking a rule even when there is no chance of getting caught)
211.    Visual learning strength
212.    When processing language (which requires multiple channels working together), has difficulty regulating just one channel, difficulty discriminating between relevant and irrelevant information
213.    When questioned regarding what could be learned from another person's facial expression, says, “Nothing.” Faces do not provide him with information. Unable to read these “messages,” he is unable to respond to them
214.    Will only tolerate foods of a particular texture or color



Resources for couples affected by ASD: 

==> Living With Aspergers: Help for Couples

==> One-on-One Counseling for Struggling Individuals & Couples Affected by Asperger's and High-Functioning Autism

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